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[personal profile] erinptah
"[Kevin Pratt-King] had asked McCain for help after being diagnosed with the same form of aggressive cancer, glioblastoma. Instead of offering aid, according to Roy’s tweet, McCain advised them to move to a different state."

"Social workers began going door to door in San Juan housing projects, explaining that a pill could be taken daily to prevent pregnancy. Once women were told what the pill did, they signed up by the hundreds. However, these women were not informed that they were part of a clinical trial or that the treatment was experimental."

"Side effects [of the vaginal implant] can range from chronic pain and loss of sexual function, to major complications like the implant protruding through the bladder, or bowels, even necessitating removal of organs ensnared in the mesh. It can shrink inside your body, slicing through nerve endings, tissue and organs."

"If someone makes the effort of going to doctor after doctor, and all they are given is a pat on the head and told, 'Oh, sweetie, you'll be OK—you just need to smile more,' that is a failure of the physicians." Article covers both social biases (like doctors assuming a woman's problems are psychosomatic instead of doing tests) and biological ones (like researchers only testing on male mice, leaving them with huge gaps in knowledge regarding biologically female humans).

"The Gay Men’s Chorus posed to illustrate the impact of AIDS. Those dressed in black, with their backs turned, represent those who had died." This 1993 photo is a punch in the heart.

"The military spends five times as much on Viagra as it would on transgender troops’ medical care."

And for something more hopeful:

An experiment, recounted in comic form: If you put rats alone in cages, they'll addict themselves to morphine. If you put them in an enriching environment with a bunch of other rats to hang out with, they'll avoid it.

Gisella Perl, the "Angel of Auschwitz" -- who got that title by providing abortions, so the Nazis wouldn't have pregnant Jewish women to experiment on.

"As what was thought to be the largest referral service in the country, which referred an estimated half million women for abortions in its six years of existence, the [Clergy Consultation Service] had significant market power that it leveraged to reduce the going rate for an abortion." The name isn't a euphemism. It was literally a coalition of Protestant and Jewish religious leaders.

"Intersex advocates are rejoicing at a paper released by three former US Surgeons General. The surgeon-generals called for an end to forced medical surgeries on young intersex people."

(no subject)

Aug. 16th, 2017 08:29 am
the_rck: (Default)
[personal profile] the_rck
I slept pretty badly last night. I was still sneezing and all that, so I couldn't use the c-PAP. I seem to be doing better in that regard this morning, but I woke when the Benadryl wore off in the middle of the night.

Our current best guess as to the problem is a combination of dust, ragweed, and the c-PAP. The dust and ragweed wouldn't normally give me this much trouble, not at the levels they've been at. I think that my sinuses have been irritated by the c-PAP and so are more reactive to other things. I haven't had a summer this bad for allergies since I was in high school.

All of my plans for the week, such as they were, have been shot to hell. They mainly consisted of writing and watching DVDs that can't be renewed (I have about fifty hours of lectures on DVD that can't be renewed) and more writing.

We have a very long day ahead of us as we'll be heading up to Interlochen to bring Cordelia home. (There are reasons for this that I'm not willing to go into in a public post.) It's been a hard decision, and I still need to make some phone calls about it. Part of me wants to go back to bed and to send Scott on his own, but that would be unfair to him. He could do it. He would, too, if it was necessary, but I can go.

We plan to get on the road as soon as we're both dressed and both have had breakfast.

(no subject)

Aug. 15th, 2017 01:28 pm
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[personal profile] the_rck
I'll be going to Medequip tomorrow to try on some different masks. The idea is to find something that won't irritate my sinuses to the point of days of sneezing. The current one doesn't provoke that all of the time.

I want to nap, but my sinuses are still in rebellion. I'm not sure if it's the c-PAP or the ragweed or the dust from cleaning. It might be all three. I used my neti pot (I don't very often, just when I'm worried that something like dust or pollen might be setting me off).

The orientation session last night was a bit overwhelming. Too many people, no AC, and lots of stairs.

All of the staff members specified their pronouns. None of them used anything but the he set or the she set, but I'm glad they did it because it's entirely possible that there were kids in the audience who needed reassurance that their pronouns will be respected.

We found someone who wants the Legos that I washed/bleached on Sunday. Scott's sister's SIL's church can use them. She's willing to pick them up. We still have a few other things to give away/donate.

My mother has sent me a url for the parts we need to repair the love seat and chair in the basement. I just need to measure the pieces of the support straps we've still got to make sure we order the right things. I don't know how long it will be before Scott has time to do the work, but getting the parts is the first step.

I'm really done in. If you've sent me something in last few days that requires thought, I might manage it tomorrow, but it's not going to happen today.

(no subject)

Aug. 15th, 2017 07:22 am
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[personal profile] the_rck
Currently sitting at Skyline, waiting for Cordelia to board the bus to camp. It's raining so we're waiting inside while they load the luggage. Scott's still here. He doesn't have to be at work until 11. My main worry is that we forgot to pack something that Cordelia will actually need.

They misspelled Cordelia's name on her name tag-- Cordilia. She's got a new one now, but her name is wrong everywhere else. The application was online, so I have no idea how they got it wrong.
erinptah: (space)
[personal profile] erinptah
People killed by police in the US, 2017. Currently at 759.

Charlottesville-based organizations that can take your money. (The Twitter thread have been going around; this is a blog post that rounds up the links.)

"'I was expecting him to come home, not to be buried,' [the 16-year-old's grandmother] told the station. 'I was telling him, give yourself a little while and you’ll be home with me.'" Justice for Aries Clark.

"We are among the vast majority of Americans who believe that we must take sensible steps to prevent massacres like the one that took my daughter’s life. We will continue to speak up. We will not go away."

2014 FBI study: "There were, on average, 16.4 [mass] shootings a year from 2007 to 2013, compared with an average of 6.4 shootings annually from 2000 to 2006. In the past 13 years, 486 people have been killed in such shootings, with 366 of the deaths in the past seven years." This was commissioned by Obama post-Sandy Hook, and was the first FBI study of its kind.

"...two officers who encountered the armed off-duty officer ordered him to the ground. He complied. When they recognized the off-duty officer, they told him he could stand up and walk toward them. Another officer just arriving at the scene saw the off-duty officer get up and, not knowing he was an officer, fired his weapon once at the man."

"Southaven officers went to the wrong house to serve a warrant on Monday, which resulted in the shooting death of a man who did not have any active warrants out for his arrest." Worse, they shot Ismael Lopez through his front door.

(no subject)

Aug. 14th, 2017 02:58 pm
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[personal profile] the_rck
I wore myself out completely yesterday, what with dealing with spraying Cordelia's clothes and sorting the crap from the basement. I had to ask Scott to go get me a Wendy's burger in order to be able to think and to stave off a headache that was heading migraine-wards. Two loads of laundry got done, too, but Scott and Cordelia did parts of that.

Scott went out to the Games Library Day in Ypsilanti. I had to ask him to leave early because I used up all of the anti-tick spray for Cordelia's clothing before I got the sweatshirt and the single pair of long pants she's taking. I got all of the t-shirts and shorts.

I started sneezing last night around 9 p.m. and haven't really stopped. I wasn't able to use the c-PAP because of it. I've got the AC cranked just in case it's a ragweed thing (which it might be because it's been cool enough recently for the AC not to run).

We have the meeting for Cordelia's camp orientation tonight at 6:00. I hope there will be signs because telling us to meet 'in the choir room' isn't actually much help with a building that size that none of us know. Cordelia and I have been searching desperately for a set of dress shoes that fit her. We have a single shoe from two different sets (one of which she swears had both shoes in her suitcase two days ago). The second available shoe is navy instead of the required black but will probably pass well enough if I can find the other.

I got a germ of an idea for my UCon game scenario last night, but I'm not sure yet what direction to take it. I'm going to call it a 'home rules' system, though, probably with a note that I'll be mostly using percentile dice.

I have my Darkest Night assignment. I'm going to have to think about it for a little while. I'm confident I can write the fandom and make it dark. I'm just not sure I can use more than one of the freeforms (this is a request that came in after I signed up and that I was sufficiently comfortable with not to run to change my sign up. If it had been there before, I might have tried to avoid it, but I also might not have). Strictly speaking, I only have to use one freeform, but... I like to do better than that.

Given that my Captive Audience story is stalled, I'll be focusing on getting that moving again before I do anything else. I was right that I did almost no writing last week while Scott was home. I think it came to 700 words, all on Saturday right at bedtime.

(no subject)

Aug. 13th, 2017 11:52 am
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[personal profile] the_rck
I only managed about four and a half hours with the c-PAP last night. At that point, I started sneezing and just couldn't keep the nasal pillows in place.

Yesterday, Cordelia and I got our hair trimmed. I had to shower after because they sprayed my hair with something scented to get it wet, and that stuff dried sticky and made my nose itch. The hair place is a couple of doors down from a Starbucks, so we all got something there. Then we went to Target to get a couple of things Cordelia needs for camp. We ended up buying a bunch of DVDs, too. Some things Cordelia wanted desperately, a copy of Moana for me, and several things that were about $5 each and seemed worth that much.

I'm kind of puzzled as to why I can watch and enjoy Moana when most things involving sea/ocean travel set off my anxiety incredibly strongly due to my phobia of deep water. Maybe it's because the ocean seems self aware and more or less friendly?

We picked up food at Zoup on the way home. I like their food, but there's a problem in that I probably ought to switch to a different soup than my fallback but can't find any other options that I can eat safely. Avoiding tomatoes and peppers and anything heavily creamy makes that really hard. I got a side soup and a half sized salad. Scott got a side soup and a half sandwich. Cordelia got a sandwich.

I discovered, after we got home, that our current loaf of bread had started to grow mold, so Scott will have to go out and get a replacement today. He wants to go to the Games Library Day which starts soon, but there are several things I need him to do first. We have to go to the library. I need him to bring up a box or three from the basement for me to sort. He has to put up a cloths line outside so that we can put anti-tick spray on Cordelia's camp clothing. That goes on wet and is supposed to air dry outside. I really want to get as much sprayed today as we can.

(no subject)

Aug. 12th, 2017 10:53 pm
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[personal profile] the_rck
I saw the nutritionist yesterday. She suggested that it might be helpful for me to see a nutritionist attached to one of the specialty clinics. She specifically mentioned two, but gastroenterology is the only one I remember. The other one made sense, too, but I can't for the life of me remember. The primary thing I need help with is dealing with fatigue and inability to sleep properly due to family realities. I spend a lot of time eating to stay awake or to stay able to think even when staying awake isn't a problem.

A lot of the advice for how I should eat also runs aground on anxiety related problems in terms of how my body responds to food. Both the reflux and the IBS are vastly dependent on my anxiety levels, not immediately but over days, weeks, and months. One bad day is trivial. One good day is also trivial. When I'm having a lot of anxiety, I don't dare eat much in the way of fruits or vegetables because they all spike the IBS. The things that are safe are things like plain potatoes, white rice, some types of bread, oatmeal, and plain pasta.

People keep saying, "Why don't you just sleep in a different room?" and then I laugh. The only available 'other room' is the partially finished basement which has no emergency egress and is therefore illegal for that purpose. Also, when you're down there, you can still hear everything happening upstairs. Someone just walking around is enough to keep sounder sleepers than I am awake (friends and relatives have complained about it).

Earplugs don't help, nor do masks over my eyes to keep out the light. The real problem is-- How to put it? Activation might be the best word, I think. I need to know that Scott and Cordelia are okay and in bed before my brain will let me settle. The only way to get around that is a lot of practice, possibly months before it takes, or medication.

I exchanged emails with the sleep disorders clinician I've been seeing. She says that she's got an idea for a different mask that might decrease my problems with coughing/sneezing from using the c-PAP. She doesn't think the one she originally prescribed to replace the nasal pillows is the right choice. I do think I might do better with a mask than with the nasal pillows because those keep moving out of place. I woke about three times in the early morning today because the weight of the hose had pulled the pillows sideways (I was on my back) enough that one was no longer anywhere near the right place. The machine still thought I had a good seal, so I have no idea how it measures that.

(no subject)

Aug. 11th, 2017 08:41 pm
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[personal profile] the_rck
I've signed up for [community profile] darkestnightex. Sign ups run for a couple of more hours tonight.

Only one of my requests has an offer that isn't from me, so I guess I know what I'm likely to get. I tailored my offers so that I was only offering matches to things I know that I can write and will be likely to enjoy writing. I offered seven fandoms, at least two with multiple possible matches, that way. I'm debating adding more offers, either more things that I know people are asking for or fandoms that I love that no one has asked for so far but that, maybe, they might.

I wish it were easier to sort the requests summary pages. I also wish that it was possible to click on a fandom in the sign-up summary and see the requests for that fandom. It would make looking at things with few offers much easier because I could take a look to see if there's any chance I could write any of the requests without having to search through the requests summary pages.

(no subject)

Aug. 11th, 2017 08:34 am
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[personal profile] the_rck
I spent most of yesterday writing up a document for out of town Ingress people who are coming to the anomaly in Ann Arbor at the end of the month. The hotels for our side are in a part of town that I know well, so I started off talking about the bus options from there to downtown and/or central campus and then got into parking and how the parts of the University of Michigan fit into the town and the food options out by the hotels and as one heads into town. I also mentioned publicly accessible bathrooms (the coffee shops are the best options but wheelchair/scooter access may vary).

I ended up with thirteen pages of babbling. Someone else caught an error that I've now corrected-- I used 'Westland' (the town where Scott works) instead of 'Westgate' (the shopping mall out Jackson Road near 94).

Somehow, that ate all of the time I'd meant to use for other things.

Around 8 p.m., Scott and I went out to a place we hadn't been before for some Ingress. I'd spotted a cluster of about a dozen portals in a cemetery when we drove by a few months back, but somehow, we never got around to going out there before now. It was about a ten minute drive. We didn't end up keeping the portals long, but they were new for both of us. I let Scott capture most of them because he's close to leveling up, needing about 250K points while I need 1.5 million points.

There are more portals further out that road, but I'm not sure there's another cluster that large.

He and I both need a lot of specific bits of equipment for the anomaly. I have no idea how we're going to be able to get it all given the lack of available time. Well, I theoretically have time. I just don't have the stamina or the access to visit a lot of portals. I'm also going to have to ditch all my keys. I don't want to, but I don't see us paying for any equipment like key lockers. I suppose I should look and see how much they cost, but I really don't think it's a justifiable expense.

I'm worried about the anomaly because of my mobility and stamina issues. I've explained them to the organizers, but I'm not sure they actually understood. When I say that an hour to an hour and a half of walking very slowly is a hard limit, I really do mean it. If I do that much, I'm not going to be doing anything else that day. They put me (and Scott so we can be together) on a 'slow moving team,' but the anomaly will last about four hours. I really, really can't manage that.

And that's without the possibility that Scott might not make it until two hours into the dratted thing due to having to work. We won't know about work until the day before, so it's not something we can plan for.

They also want us to install several communications apps on our phones, and I'm dubious about it. I really don't want anything that will eat up my battery that way, and I try not to install apps unless I'm certain I'm going to use them a lot. Ingress, Feedly, Life360, Wunderlist, and Habitica are the extra apps that I actually use a lot. I have one game besides Ingress, and that's FluidMonkey which is good for when my brain has dribbled out my ears. I don't use it often.

The list is zello, ingress intel, maps, slack, and glympse. I have no idea what zello and glympse are. Ingress intel makes sense, but I had the impression from something Scott said a while back that it wasn't available to me. Guess I'll check. I've looking into the Slack app, and everything I read about it makes it sound like something I don't want within six miles of any device of mine.

I suppose I can install apps the day before and delete them immediately after. There are apps on my phone that I really, really don't want but can't delete because they're bundled into the OS.

We watched a movie after we got back and somehow lost track of time so that we didn't turn off the light until midnight. I once again couldn't sleep because I was too warm. That led to spiraling anxiety about all the things I need to get done and how I won't be able to on so very little sleep. I ended up with about four hours of fitful sleep, all without the c-PAP. (I took it off before I fell asleep, about an hour and a half after I put it on. At that point, it claimed that I was averaging seven prolonged stoppages of breathing per hour. This seems to be a trend. That is, if I'm awake with the stupid thing running, it registers lots of problems, but if I fall asleep quickly, it registers almost none.

I think the Ativan is working less well in terms of helping me relax to sleep. I'm not sure how much of that is the way that Scott being on nights for two weeks and then on vacation this week has thrown off my routines and how much is anxiety about getting Cordelia ready for camp next week and high school starting after Labor Day. Right now, our plan for getting Cordelia to Skyline for camp departure is for Scott to drop her off before he heads to work. She says she doesn't want/need me there, but I'm not sure whether or not she'll stick to that.

Cordelia's supposed to by there at 7 a.m. for an 8 a.m. bus departure. If we deal with a cab, we would need to call at 6 a.m. in order to be sure of getting there by 7. That would likely mean us getting to the school by 6:30. At that point, it kind of makes sense for Scott to drop us (or just Cordelia) off before heading to work. It would mean getting there at 6:15 unless he gets permission from work to be a little late (which he says he's going to request). If he's able to be there until Cordelia can get into the building, I'd be willing to stay home. I just don't want her sitting, alone, outside the school for forty five minutes.

Cordelia's never been away for anything like this long. The closest was four or five days with Scott's sister when she was seven and I had my gallbladder removed. I think that it will be a good experience for her, but there's going to be anxiety for all three of us until we settle into it.

AAAAAAAAAAAAAAAAAA

Aug. 10th, 2017 02:08 pm
seventhe: (Cock: GIANT COCKFISTING)
[personal profile] seventhe
AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA

(no subject)

Aug. 9th, 2017 01:48 pm
the_rck: (Default)
[personal profile] the_rck
Scott has gone off to teach our niece and a couple of her friends how to play D&D. I'm chipping away at certain bits of household chores that have needed doing for quite a while as well as working on more urgent things. I was considering taking a bit of a walk, but it's too hot out there for me. Maybe this evening.

Before he left, Scott brought up one of the boxes of junk from the basement. I've almost finished sorting that. Most of it is trash, but I've got a grocery bag of stuff to donate and a grocery bag of Cordelia's old report cards and certificates and school work. Scott wants to keep all of those papers, but we don't have a defined place for them. I want something other than a paper bag for storage.

There are a lot of index cards in the bottom of the bag. I'm not quite sure what to do with them. We might still use them, but they're loose and kind of grimy. I'm pretty sure Scott would want me to keep them, but... I think that the bottom of the box has mouse droppings all over, so I'm inclined to pitch them and the box.

I also found Cordelia's 3DS which she had apparently never realized was missing. I didn't find the stylus, but I suppose that's easy enough to replace if she gives it away or donates it.

I have no clue at all why there's a rock the size of my fist at the bottom of the box. It's gray, dirty, and ugly, and I don't recall anything that would have given us something of the sort as a souvenir. I feel ridiculous putting it in the trash, but putting it in the yard will just mean the lawnmower hits it the next time Scott mows. I can't see myself walking to the science and nature center or to the railroad tracks in order to put it down.

I kind of want to write, but I'm not sure I have sufficient brain for it just now. Last night was not great for sleep, and I had to be up with Cordelia this morning.

I have managed to find my cloth sling and am wearing it so that I don't keep using my left arm. I'm hoping that the elbow will start to recover if I can just keep it still.

The results of my blood draw on Monday are mixed. My blood sugar is stable, but for the first time ever, I have high(ish) cholesterol and triglycerides. I was expecting my A1c to have gone up because my diet, with regard to sugar, has been terrible during the last few months as I've struggled to keep myself functioning. My blood pressure at my appointment today was 98/63, so that's still fine. It bounces around a bit, but it's never once gone higher than 110/80 which I've been assured is still solidly in the middle of the normal range.

(no subject)

Aug. 8th, 2017 08:01 pm
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[personal profile] the_rck
I've gotten the results on the uterine ultrasound, and, hm, well most everything looks fine. It's just that the report twice mentions something that they couldn't quite get a good look at that may or may not have really been there and that they're ruling 'clinically insignificant' without explaining why. I will be seeing the gynecologist tomorrow and asking exactly what that means. If nothing else, my breast cancer experience shows that, just because something can't be seen clearly. doesn't mean it's not there or not important.

Scott and I voted this afternoon. There was no wait at all. I wish more people would turn out for these primaries because they determine the city council. The winner of the Democratic primary almost always runs unopposed or opposed only by an independent candidate. Only about 10% of eligible voters (if that many) turn out for off year primaries.

Scott and Cordelia are out shopping for some things Cordelia needs for camp next week. Scott is convinced that everything she needs can be wedged into one of our small suitcases (we don't have any medium sized suitcases), but I'm not certain that Cordelia will be able to do it unaided. Since they will have daily cabin inspections with the expectation that everything not currently on the child be in the suitcase... Um.

I thought about going with them, but I'm very tired, and Scott doesn't get all that much time with just him and Cordelia.

I didn't get up until about 9:30 this morning. When I got up, I felt like I might actually be starting to get to a better place in terms of resolving my sleep deficit, but I don't know. I lost my oomph mid-afternoon after I got Cordelia's clothes washed and the trash and recycling out and a couple of other every day chores out of the way. I completely lacked the wherewithal to feed myself lunch.
erinptah: (daily show)
[personal profile] erinptah
You can send a set of ITMFA pins to your Congressperson. Proceeds go to the ACLU, Planned Parenthood, and the International Refugee Assistance Project.

"'The refugee agencies didn’t really feel comfortable sending their kids anywhere,' Adams says. 'We needed to be that place for them.” It’s no coincidence that as Sullivan has established itself as the go-to school for refugees in the last couple of years, its academic standing has also risen."

"Airwars researchers estimate that at least 2,300 civilians likely died from Coalition strikes overseen by the Obama White House—roughly 80 each month in Iraq and Syria. As of July 13, more than 2,200 additional civilians appear to have been killed by Coalition raids since Trump was inaugurated—upwards of 360 per month, or 12 or more civilians killed for every single day of his administration."

"I was having lunch with Shonda Rhimes last week and a woman stopped at the table — well-dressed, probably in her 40s or 50s — and she said, ‘I just can’t leave this restaurant without telling you I’m just so devastated,’ and she just started to cry. I was on the other side of the table, or I would have done what I have done countless times since the election, which is just put my arms around her. Because people are so profoundly hurt." The surreal post-election life of Hillary Clinton.

"Not only were the Hartes upstanding citizens with clean records, they were also both former Central Intelligence Agency officers. And they were not weed growers. Rather, the quick-trigger suspicion of law enforcement had snagged on — it would later turn out — tea leaves and a struggling tomato plant."

"Initially, the city would impose property and sales taxes, but the property tax would ratchet down to zero over time. The business-friendly environment would draw new economic activity to Von Ormy, and eventually the town would cruise along on sales taxes alone." Spoiler alert: it did not cruise. It crashed and burned.

"A Facebook group for Norwegians opposed to immigration was widely mocked after members apparently could not tell the difference between empty bus seats and burka-clad women."

(no subject)

Aug. 7th, 2017 09:40 pm
the_rck: (Default)
[personal profile] the_rck
The worst bit of this week is over now. I've done my fasting blood draw and uterine ultrasound. We got Cordelia through her blood draw. That last was pretty rough on all three of us.

I felt much better yesterday afternoon after Scott and Cordelia went off to the Eagle Scout ceremony without me. I started getting tense again when they got home, but I think that was more because I was suddenly looking at all the stuff that still needed doing rather than because they were back.

I haven't done any writing in the last couple of days. I'm not sure if any writing will happen this week at all given everything that needs doing while Scott's off work, but it's hard to say.

Scott and I both slept kind of badly last night. I managed the c-PAP all night, but I never really managed deep sleep. He, of course, was dealing with his body's sense of when to sleep being off. He got up with Cordelia this morning. I pretended to sleep a bit longer (getting out of bed with the need to continue fasting would have been hard).

(no subject)

Aug. 6th, 2017 02:02 pm
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[personal profile] the_rck
Yesterday continued as one of the worst headache days in recent memory. The sinus part more or less went away (but my sinuses itched), but anxiety/stress made my shoulders, neck, and the back of my head hurt terribly, and the main headache moved above my eyes to become a classic (for me) migraine. I was even light sensitive.

I took Amerge. I tried to nap. I tried stretches and relaxation. I tried writing a to do list for the rest of the month and giving it to Scott to see if he could help me make it smaller. He dealt with talking to the sports medicine surgeon and with the groceries (except that he forgot something that I really will need for tomorrow). It turns out that he has access to email Cordelia's patient portal (I don't ) and could just send a message through that instead of calling.

I slept badly last night and ended up getting up at about 7 a.m. (after going to bed at about 2 a.m.) because I had horrible reflux of the sort I only get when I'm really, really falling apart due to anxiety. Omeprozale and oatmeal did enough to let me lie down again, and I dreamed a bit, so I must have slept at least a little.

I'm not sure anything much is going to help until I'm through today and tomorrow. I need to do all of that stuff without Ativan because my prescription says one a day and I'm using that one to let me sleep with the c-PAP on. My doctor says taking more than one a day is fine, but I can't refill the damned thing before thirty days have passed, so doubling up means skipping some other day.

Scott has decreed that I'm not going to the Eagle Scout ceremony for our nephew. It's better for me that way, but I feel guilty because I missed his graduation party, too.

Hm. For tomorrow, they want the fasting blood draw to be in the window between 10 and 12 hours of fasting. They open at 8:00 a.m., and I can't eat after 8:00 p.m. if I want to be able to sleep before 3:00 a.m. I have no idea how to manage this. Given when Cordelia leaves and the buses in general, I can't get there before 9:00. If Scott's able to stay up long enough to get me to UHS, it will still likely be 8:15 or 8:30 when we arrive because of traffic. The window used to be between 12 and 16 hours fasting.

I might be able to get the blood draw done somewhere else. Most of the clinics affiliated with the university open at 7:00 a.m., but I'd have to get there without Scott's help because of Cordelia needing one of us at home up until 7:50. I'm not willing to take the bus at that time of day because that bus is a major, major commuter shuttle between the park and ride lots and the hospital and central campus.

(no subject)

Aug. 5th, 2017 01:34 pm
the_rck: (Default)
[personal profile] the_rck
Okay, I have to make it clear to Scott that, no matter how cool it is outside, we are not opening the windows again until all of the ragweed is dead. He opened them around 6 last night and left them open when he went to work. I didn't try to close them because I have a very difficult time getting the windows to move. I'm now sneezing like crazy and have the worst sinus headache I've had in years. I've shut the windows as well as I can (Scott's asleep), and I think I'm going to have to force the AC to run in order to try to clear the air in here. I've taken all of the allergy medication that I can. The next step is a sinus wash. I just hate doing that.

I suppose I should consider it a win that it now takes several hours for ragweed to knock me on my ass? When I was a kid, I was miserable for months each year because of it. Seven years of allergy shots did something.

I wrote 1300 words last night. Sadly, none of it was for my Captive Audience story. I also worked a bit on my Darkest Night sign up. I think there are enough requests that I'd enjoy doing now to make signing up feasible. I will likely wait until the last minute to make sure that I'm not offering something that might match on something I can't or don't want to write. There are some things requested that I've looked at and realized that, while I could write for those requests, I wouldn't enjoy it. I think that part of my problem is that I don't much want to write anything sexually dark for this. I've written a lot of that this summer and would like to write something dark in a completely different way.

I'm trying to get myself to the point of being able to respond politely to a couple of comments on Auguries of Innocence (my Harry Potter darkfic AU). The comments are from someone who wants me to do terrible things to Harry and Hermione for having become ruthless people who sometimes do terrible things but to redeem Ron (who has done and continues to do equally horrible things) so that I can have an endgame with the commenter's OTP-- Ron/Draco-- living happily ever after.

I am hoping to take the story in a 'things get better' direction, but I really think that, in that story, Draco's idea of happily ever after won't involve being paired with anyone at all. I also think it likely that the current Harry/Ron/Hermione relationship isn't going to end during the course of the story because it's actually pretty stable, given the givens.

I ended up lying down for a while yesterday because I was so tired I could barely stay upright, but I didn't sleep because every position I tried lying in hurt. I ended up having Scott get me a Wendy's double with cheese (and the staff there screwed up the order and gave me one with everything instead of just cheese and meat and bun, so I had to throw out the top bun. At least the lettuce kept the ketchup, mayo, and mustard from getting on the burger itself). That got me through about four hours, up until Scott left for work. I was even able to do the dishes and run some laundry.

At that point, though, I was in that weird zone where I was nodding off but my body was too tense for me to feel like sleep was even remotely possible. I think I got about six hours of sleep before Scott came to bed. After that, I got another three, but it was all of the sort where my brain kept clawing for consciousness over my body's objections. I think that a big part of that was the sinus headache which felt, the whole time, like I needed to remove the front of my head from the eyeballs down.

I just feel like, every time I ought to be able to get a refreshing night of sleep, something else smacks me and makes it not happen.

I ended up ordering a bunch of not very expensive items ($3-$7) from my Amazon wishlist and from Cordelia's. I got nine items for about $50. I'm hoping to use the stuff for Cordelia as a well done gift after we actually do the blood draw on Monday.

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Aug. 4th, 2017 01:14 pm
the_rck: (Default)
[personal profile] the_rck
I slept eight hours last night, all of it with the c-PAP, but it was very light and not very restful sleep because I still feel like I've been flattened and desperately want to go back to bed. My elbows hurt when I lie on my back for too long (I'm pretty sure that the joints are hyperextending) because there isn't a way I can keep my arms bent without making other things hurt even more.

My parents arrived here about 11:30, and we ended up going to the same Chinese place we went to the last time they came. I had really wanted to go to Totoro which is downtown, but losing that half an hour made it just not really feasible.

My mother texted me around 5:00 to say that the procedure went well and that they were already back in Lawton (two hours away).

Around 3:20, Cordelia, who was at the downtown library, called me to tell me that her best friend had hit her head while volunteering at the same camp where Cordelia did last week. This is the girl who had the bad concussion at the end of May and then needed another ER trip for a relapse two weeks later. I woke Scott and he drove over to get her because we didn't want her to have to wait there or to have to walk up that steep hill in the heat. Cordelia got home about thirty seconds after Scott got her friend here, and the two of them went into Cordelia's room and seemed to be happy. (We'd been kind of worried because the other girl looked kind of out of it and wouldn't talk to either of us.)

I had tried calling the other girl's mother and texting her mother while Scott was getting her but failed to reach her. She called us on the landline about fifteen minutes after her daughter got here. It took her another half an hour to get here because she had to take the bus. The girl said she'd called Cordelia because she didn't have any other numbers for our family, and her mother said she'd correct that oversight as she (the mother) has my cell, Scott's cell, and our landline numbers.

The last I heard, the other girl was doing okay, but that was last night. I kind of suspect that she's not at camp today, but I don't know.

Monday is going to suck hugely. I need to be up for Cordelia at 6:30 and do a fasting blood draw sometime after 8:30 or 9:00 (need to check when UHS opens) which probably means getting down there by bus. At 1:00 I have a uterine ultrasound, also at UHS. In the evening, we need to take Cordelia out to East Ann Arbor for a blood draw.

I wanted to do Cordelia's last night since the place was open until 7:30 (only until 5:30 today and so utterly impossible unless Scott was willing to do it before going to bed which he wasn't). Scott thought that we ought to give Cordelia at least a day's notice. I disagreed strongly, but he went ahead and told her right before he left for work last night. She spent the next hour having something approaching a panic attack and blaming me for it. I am decidedly unhappy with Scott about this.

Also, doing it last night would have made it more likely that, if she needs vitamin supplements or thyroid medication we could still manage to get the camp permission slips for those signed and turned in before departure. Cordelia's pediatrician requires a two day turnaround for those things, so Thursday is the absolute latest we can turn them in and still have them for the orientation meeting the following Monday evening (departure is at 8 a.m. on Tuesday with Cordelia needing to be there at 7 a.m. which is going to be vastly fun given that going by cab means a choice between risking being late and being almost certain to have a half an hour to sit outside the building before they let us in).

I talked to one of the camp organizers Wednesday afternoon about medications and such. She clarified that, although all the forms say that prescriptions need to be held and dispensed by either the nurse or the cabin counselor, prescription topical acne medications are not included under that. I'd have thought, given the age group, that those medications would be common enough to merit some sort of mention of them being an exception.

One of Cordelia's prescriptions has changed dosage, and the bottle is too full for us to be able to get a new one with the new dosing information. The camp is completely inflexible on that. They will administer medications exactly according to label no matter what other documentation you have.

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Jenny S-T

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